Disability

I can’t create a website without speaking to the issue of disability, and brain tumors in particular. Because it is an invisible disability, (well, most of the time), it is often misunderstood. There are no words or images that can truly explain what the experience has been and will continue to be for me, to say nothing of what it is like for anyone else. In my case I changed from a Mensa-level multi-tasker, working as a caregiver to multiple elders, keeping track of finances and other tasks at home, holding a full-time position as an R.N., and enjoying a successful career exhibiting my installations and drawings. I was completely independent. With the diagnosis of my brain tumor, I was abruptly pulled from the workforce, unable to drive or complete even simple math. I have balance issues, am epileptic and am incredibly slow at whatever task is at hand. However, I have learned a great deal. I continue to follow the interests of the “original me” as I navigate the world with this new body and brain. Please visit the Poetry section read what my neuro-oncologist said after reading one of my published poems. The thought that I can help others with brain injuries live more fully through creativity keeps me going.